Dear supporters,

We are delighted to invite you to the Gala to be held on Saturday, October 5, 2019 from 1:30 pm at the Palais des Académies (Rue Ducale 1, 1000 Brussels) to celebrate the 20th anniversary of the Belgian Marfan Syndrome Association (ABSM).

ABSM has decided to be closely associated with this celebration, as we will have the opportunity to present the Foundation we have created to advance understanding of the genome in order to provide better care for rare diseases.

Eminent members of our scientific committee will also be speaking, such as : Professor Anne DE PAEPE, Rector of Ghent University ; Professor Julie DE BACKER, Ghent University ; Professor Bart LOEYS, University of Antwerp and Professor Guillaume SMITS, Université Libre de Bruxelles.

On this occasion, Professors Loeys and Smits will report on the initial results of the GEMS and GEMVAP projects, which have been carried out thanks to our action and your support ! We look forward to hearing them.

Following the presentations, several patient associations will sign a declaration of cooperation with the 101 Genomes Project, while singer Olga Dubois will perform a piece by Rachmaninov in the marble gallery of the Palais des Académies, where a cocktail reception will be served.

You’ll find all the details about this event in the attached invitation.

We hope you’ll have the opportunity to join us on October 5, and if you do, we invite you to confirm your attendance via https://absm20ans.eventbrite.be.

Kind regards,

Ludivine Verboogen and Romain Alderweireldt

The 101 Genomes Foundation is pleased to invite you to the conference to be held on Saturday, October 5, 2019 at the Palais des Académies on the occasion of the 20th anniversary of the Belgian Marfan Syndrome Association (ABSM).

Program

1:30 pm welcome – 2:00 pm presentations – 4:30 pm cocktail reception and musical entertainment

Speakers

Yvonne JOUSTEN and Léon BRANDT will look back on 20 years of ABSM.

Professor Anne DE PAEPE, Rector of the University of Ghent &.
President of the 101 Genomes Fund at the King Baudouin Foundation,
emphasize the essential role of patient associations in supporting research

Professor Julie DE BACKER, University of Ghent & Co-President
of the Scientific Committee of the 101 Marfan Genomes Project, will trace the
” long road to precision medicine for Marfan syndrome “

Mrs Ludivine VERBOOGEN and Mr Romain ALDERWEIRELDT,
founders of the F101G, will explain the common goal of ABSM and the F101G
save 10 years in Marfan syndrome research

Professor Bart LOEYS, University of Antwerp & Co-Chairman
of the Scientific Committee of the 101 Marfan Genomes Project, will present the state of research initiated
through the action of F101G : Genome-wide Epistasis for cardiovascular severity in Marfan Study (GEMS)

Professor Guillaume SMITS, ULB, member
from the Scientific Committee of the 101 Marfan Genomes Project, will explain the ” GEMVAP ” tool developed thanks to the F101G and the role of artificial intelligence in the diagnosis of Marfan syndrome.

Ms Alisa HERRERO and Mr Thomas CARTON DE WIART will present ” BEAT-IT ! “, the tool that will help raise the funds needed for research and associations.

Signatures

The presentations will be followed by the official signing of the declaration of cooperation for the 101 Genomes Project dedicated to Marfan syndrome by the presidents of the associations present.

Address of the day

Rue Ducale 1, 1000 Brussels

Please confirm your attendance at https://absm20ans.eventbrite.be
Information : 20ans@marfan.be or +32 (0)470/42 91 39

King Baudouin Foundation – 101 Genomes Fund | BE10 0000 0000 0404 BIC : BPOTBEB1
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