Digital Thursday June 8, 2023 I³H symposium: Patient access to innovation: lessons from rare diseases
GEMS Marfan Tuesday June 6, 2023 GEMS webinars for the Association Française des Syndromes de Marfan et Apparentés (AssoMarfans)
Digital Tuesday January 31, 2023 Géraldine Van der Auwera, 101 Genomes consultant and author of “Genomics in the Cloud”.
G4BXL Saturday May 21, 2022 We are recruiting a postdoctoral researcher in machine learning and bioinformatics for the Genome4Brussels consortium.
Digital GEMS Thursday May 19, 2022 The 101 Genomes Foundation is developing three new Apps with MIC computer scientists to facilitate research into rare diseases.
Monday November 22, 2021 Filigranes | Online action to benefit the F101G from November 22 to 29, 2021!
Monday November 8, 2021 Filigranes evening with Philippe Geluck to benefit the 101 Genomes Foundation
Digital Wednesday November 3, 2021 Three mic.brussels computer scientists intern at the 101 Genomes Foundation
Digital Saturday January 9, 2021 The F101G gets a helping hand from computer specialists (… and we have offices)!
Sunday January 3, 2021 “The King Baudouin Foundation, a key player in promoting scientific research into rare diseases in Belgium” by Bénédicte Gombault and Romain Alderweireldt
Philanthropy Saturday January 2, 2021 The eight guiding principles identified by the King Baudouin Foundation and the Fonds Dr Daniël De Coninck
Saturday January 2, 2021 “Access to medicines in the context of rare diseases” by Prof. Dr. G. G. Sandy Tubeuf and Romain Alderweireldt
Wednesday December 30, 2020 “Multidisciplinary marfan consultation organized at UCL”. Interview with Prof. Dr. Thierry Sluysmans and Ludivine Verboogen
GEMS Tuesday December 29, 2020 Bart Loeys, specialist in Marfan and Loeys-Dietz syndromes, honoured with the “Belgian Nobel Prize”: a first for rare diseases!
GEMS Tuesday December 29, 2020 GEMS | Generous donor doubles donation to 75,000 euros for GEMS project!
Tuesday December 29, 2020 The F101G speaks at the international E³SUMMIT summit organized by the American Marfan Foundation
GEMVAP Tuesday December 29, 2020 “Genomics and Algorithms for Rare Diseases Interview with Prof. Dr. Guillaume Smits and Romain Alderweireldt
Thursday November 21, 2019 “Hope makes our marfan heart beat” Lauriane Janssen (May 9, 1986 – November 20, 2019)
GEMVAP Monday November 11, 2019 Big data and artificial intelligence, sources of solutions for rare diseases
ABSM 20 Gala Sunday October 13, 2019 Ms Olga Dubois and Mr Gabriel Diaconu perform Sergei Rachmaninov in the Galerie des Marbres
ABSM 20 Gala Scientific Committee Sunday October 13, 2019 Fourth meeting of the F101G Scientific Committee
ABSM 20 Gala Sunday October 13, 2019 Declaration of cooperation in the 101 Genomes project dedicated to Marfan syndrome
ABSM 20 Gala Sunday October 13, 2019 “Together to save 10 years for research” by Ludivine VERBOOGEN and Romain ALDERWEIRELDT
ABSM 20 Gala Saturday October 12, 2019 “impatients!, a new approach to crowdfunding” by Ms Alisa HERRERO and Mr Thomas CARTON DE WIART
ABSM 20 Gala Saturday October 12, 2019 “Artificial Intelligence (AI) for the diagnosis of Marfan Syndrome” by Professor Guillaume Smits
ABSM 20 Gala Saturday October 12, 2019 “An overview of current research and future prospects” by Professor Bart Loeys
ABSM 20 Gala Saturday October 12, 2019 “The long road to precision medicine for Marfan syndrome” by Professor Julie De Backer
ABSM 20 Gala Saturday October 12, 2019 Watch the speakers’ speeches at the ABSM 20th Anniversary Gala
ABSM 20 Gala Thursday September 19, 2019 Invitation to the ABSM 20th Anniversary Gala at the Palais des Académies on October 5, 2019
Friday March 29, 2019 “Genomes and medicine: conquests and frontiers” by Prof. Dr. Alain Fischer, March 29, 2019
Wednesday February 20, 2019 F101G takes part in the launch of the “Global Commission” (Takeda, Eurordis and Microsoft consortium)
Rare Diseases Thursday October 18, 2018 “Genetic diseases are not invincible” by Peter O’Donnell and Alisa Herrero
Marfan Uncategorized Thursday October 18, 2018 The 101 Marfan Genomes Project as seen by Dessie Lividikou and Laurens Ivens
Rare Diseases Thursday October 18, 2018 “A citizen’s dialogue about the genome” by Gerrit Rauws (FRB)
Thursday October 18, 2018 “Two parents take on biomedical research to help their children… and those of others!” by Guillemette Pardoux
Rare Diseases Thursday October 18, 2018 “How to become experts among experts: the example of the 101 Genomes Foundation” by Fanny Duysens
Thursday October 18, 2018 “Taming the genome to advance research by 10 years” by Romain Alderweireldt
Thursday October 18, 2018 “A unique and unprecedented example of patient participation in scientific research” by Prof. Dr. G. G. Anne De Paepe
Capsule Friday June 8, 2018 “Out of the three billion letters that make up the DNA of a genome, we understand only a small part” by Prof. Dr. G. G. Guillaume Smits
Capsule Friday June 8, 2018 “For me, better informing and treating the patient is the overriding goal” by Prof. Dr. G. B. Julie De Backer
Capsule Friday June 8, 2018 “Trying to better treat and prevent complications of the disease” by Prof.. Catherine Boileau
Capsule Friday June 8, 2018 “There is a need to establish a legal framework that fits research activities as well as possible” by Michael Lognoul
Capsule Friday June 8, 2018 “The F101G’s purpose is entirely in line with the King Baudouin Foundation’s objectives and missions” by Patricia Lanssiers
Capsule Friday June 8, 2018 “A unifying project for patient associations, at least in Europe” by Stéphanie Delaunay
Capsule Friday June 8, 2018 “Individuals carrying the same mutation can have a wide range of phenotypes” by Aline Verstraeten, UZA
Capsule Friday June 8, 2018 “A pilot project that can be extended to other diseases” by Dr. Verboogen
Capsule Friday June 8, 2018 “Transforming drama into a creative force” by Prof. Dr. G. B. Guillaume Jondeau
Capsule Friday June 8, 2018 “Genomic sequencing will advance research and make a significant contribution to patient care” by Prof.. Bart Loeys
