At the request of the Association Française des Syndromes de Marfan et Apparentés(AssoMarfans), Ludivine has recorded a video and we are organizing various webinar sessions to help people who wish to join the GEMS study(https://www.101gems.be/site). Here is the e-mail sent by AssoMarfans to its members:

Advance Marfan syndrome research from the comfort of your home !

All you have to do is watch the video below, and if you still have questions, sign up for a webinar.

[embedyt] https://www.youtube.com/watch?v=E7pUQViKezg[/embedyt]

Would you like to take part in the search for modifier genes to advance research into Marfan syndrome by joining the GEMS study, but don’t know how ? 

In collaboration with 101 Génomes, the Marfans Association invites you to take part in a webinar during which Romain or Ludivine will guide you through the various stages of the process of joining GEMS research.

During this GEMS webinar, you’ll be able to see first-hand the steps involved and ask any questions you may have about the process of joining GEMS. 

How can you register for this free webinar ? By clicking on the link for the session that suits you best : 

• Wednesday, June 7, 2023 (7-8pm): https: //events.teams.microsoft.com/event/a42be359-6ac0-4631-8250-277418cf152e@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f
• Saturday, June 10, 2023 (2pm-3pm): https: //events.teams.microsoft.com/event/2fbf484b-3c3d-49f9-9ff2-a040be813d6b@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f
• Sunday, June 18, 2023 (2pm-3pm): https: //events.teams.microsoft.com/event/ac29ab4d-6c6d-4eb9-948b-7f00d78777b2@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f
• Monday, June 19, 2023 (7-8pm): https: //events.teams.microsoft.com/event/9a300a2e-577e-4446-9caf-c591280ffad4@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f
• Thursday, June 29, 2023 (7-8pm): https: //events.teams.microsoft.com/event/cccb25f5-dcd0-4c35-99f3-c3c5de03b524@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f

We hope that many of you will take part in this very promising research project.