Dear all,
We leave behind us a particularly gloomy 2020 to begin a year 2021 full of promise, particularly for the Foundation 101 Genomes (F101G ) and the fight against Marfan syndrome since :
- The co-Chairman of the F101G Scientific Committee, Professor Bart Loeys, was recently honoured with the Belgian ” Nobel Prize “, the Prix Francqui ;
- The FWO will fund the UZGent, Professor Paul Coucke, and the UZA, Professor Bart Loeys, to the tune of 700,000 euros to conduct the search for protective genes for Marfan syndrome , i.e. for the GEMS research initiated by the F101G;
- A generous donor has doubled the donations received by F101G for GEMS to 25,000 euros a year for three years ;
- The MIC provides us with three IT specialists for the development of our IT tools and a fantastic family provides us with offices where we can welcome these IT specialists;
- Last but not least, Innoviris and the Brussels Region are releasing over a million euros to fund the work of Professors Tom Lenaerts (Machine Learning Group – ULB) and Guillaume Smits (Interuniversity Institute of Bioinformatics in Brussels – ib²). for the development of artificial intelligence-based tools to help diagnose and better understand Marfan syndrome !
In addition to these sums, and in particular thanks to the impatient campaign ! brilliantly led by Alisa Herrero, we have so far collected more than 610,000 euros in donations !
We couldn’t have done it without the support of people like you, who believed in us and gave us the courage and energy to fight this battle. We are deeply grateful.
If you’d like to continue supporting us in 2021, don’t hesitate – do it now !
We look forward to seeing you again as soon as possible.
Ludivine & Romain
For the 101 Genomes Foundation
