— Back to news Sunday October 13, 2019

Thanks

Dear all,

Thanks to you, the Belgian Marfan Syndrome Association’s Anniversary Gala Day on October 5, 2019 was a great success!

A success in terms of attendance, donations and the quality of the speeches, but above all in terms of emotions and sharing.

You can (re)experience the day by following this link, where you’ll find: all the photos from the event ; all the speakers’ speeches on video ; all the presentations by Professors Julie De Backer, Bart Loeys & Guillaume Smits, as well as those byImpatients and the 101 Genomes Foundation.

You’ll also have the opportunity to discover the contents of the Declaration of cooperation signed by the Belgian, Luxembourg and French associations to advance research by 10 years and understand the reason why Soprano Olga Dubois has chosen to interpret Sergei Rachmaninov to round off this wonderful day.

For your information, Madame Olga Dubois and her musicians will be giving a lyric concert in aid of Marfan syndrome research on Saturday October 19 in Braine-l’Alleud. We look forward to seeing you there.

Kind regards,

Douchka Peyra, President of ABSM,
Ludivine Verboogen and Romain Alderweireldt, ABSM members and founders of the F101G.

 

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