{"id":2497,"date":"2023-06-06T15:20:32","date_gmt":"2023-06-06T13:20:32","guid":{"rendered":"https:\/\/f101g.org\/seminarios-web-de-gems-para-la-association-francaise-des-syndromes-de-marfan-et-apparentes-assomarfans\/"},"modified":"2026-08-11T14:09:52","modified_gmt":"2026-08-11T12:09:52","slug":"seminarios-web-de-gems-para-la-association-francaise-des-syndromes-de-marfan-et-apparentes-assomarfans","status":"publish","type":"post","link":"https:\/\/f101g.org\/es\/seminarios-web-de-gems-para-la-association-francaise-des-syndromes-de-marfan-et-apparentes-assomarfans\/","title":{"rendered":"Seminarios web de GEMS para la Association Fran\u00e7aise des Syndromes de Marfan et Apparent\u00e9s (AssoMarfans)"},"content":{"rendered":"<p>A petici\u00f3n de la Association Fran\u00e7aise des Syndromes de Marfan et Apparent\u00e9s<a href=\"https:\/\/www.assomarfans.fr\/page\/508613-bienvenue\" target=\"_blank\" rel=\"noopener\">(AssoMarfans<\/a>), Ludivine ha grabado un v\u00eddeo y estamos organizando varias sesiones de seminarios web para ayudar a las personas que deseen participar en el estudio GEMS<a href=\"https:\/\/www.101gems.be\/site\" target=\"_blank\" rel=\"noopener\">(https:\/\/www.101gems.be\/site)<\/a>. He aqu\u00ed el correo electr\u00f3nico enviado por AssoMarfans a sus miembros: <\/p>\n<p><strong>\u00a1Avance en la investigaci\u00f3n del s\u00edndrome de Marfan desde la comodidad de su casa!<\/strong><\/p>\n<p>Todo lo que tiene que hacer es ver el <strong>v\u00eddeo <\/strong>que figura a continuaci\u00f3n y, si a\u00fan tiene preguntas, inscribirse en un <strong>seminario web<\/strong>.<\/p>\n<div class=\"relative w-full h-0 pb-[56%]\"><iframe loading=\"lazy\" class=\"absolute top-0 left-0 w-full h-full\" title=\"Participez \u00e0 la recherche sur le syndrome de Marfan depuis chez vous !\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/E7pUQViKezg?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n<p><strong>\u00bfLe gustar\u00eda participar en la b\u00fasqueda de genes modificadores para avanzar en la investigaci\u00f3n del s\u00edndrome de Marfan uni\u00e9ndose al estudio GEMS, pero no sabe c\u00f3mo hacerlo?<\/strong><\/p>\n<p>En colaboraci\u00f3n con 101 G\u00e9nomes, la Asociaci\u00f3n Marfans le invita a participar en una <strong>webinar<\/strong> durante el cual Romain o Ludivine le guiar\u00e1n a trav\u00e9s de las distintas etapas del proceso de incorporaci\u00f3n a la investigaci\u00f3n GEMS.<\/p>\n<p>Durante este seminario web de GEMS, podr\u00e1s ver de primera mano los pasos que hay que dar y preguntar cualquier duda que tengas sobre el proceso de adhesi\u00f3n a GEMS.<\/p>\n<p><strong>\u00bfC\u00f3mo puede inscribirse en este seminario web gratuito?<\/strong>  Haciendo clic en el enlace de la sesi\u00f3n que m\u00e1s le convenga:<\/p>\n<ul>\n<li>Mi\u00e9rcoles 7 de junio de 2023 (19.00-20.00): https: <a href=\"https:\/\/events.teams.microsoft.com\/event\/a42be359-6ac0-4631-8250-277418cf152e@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f\">\/\/events.teams.microsoft.com\/event\/a42be359-6ac0-4631-8250-277418cf152e@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f<\/a><\/li>\n<li>S\u00e1bado 10 de junio de 2023 (14.00-15.00 h): https: <a href=\"https:\/\/events.teams.microsoft.com\/event\/2fbf484b-3c3d-49f9-9ff2-a040be813d6b@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f\">\/\/events.teams.microsoft.com\/event\/2fbf484b-3c3d-49f9-9ff2-a040be813d6b@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f<\/a><\/li>\n<li>Domingo 18 de junio de 2023 (14.00-15.00 h): https: <a href=\"https:\/\/events.teams.microsoft.com\/event\/ac29ab4d-6c6d-4eb9-948b-7f00d78777b2@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f\">\/\/events.teams.microsoft.com\/event\/ac29ab4d-6c6d-4eb9-948b-7f00d78777b2@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f<\/a><\/li>\n<li>Lunes 19 de junio de 2023 (19.00-20.00): https: <a href=\"https:\/\/events.teams.microsoft.com\/event\/9a300a2e-577e-4446-9caf-c591280ffad4@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f\">\/\/events.teams.microsoft.com\/event\/9a300a2e-577e-4446-9caf-c591280ffad4@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f<\/a><\/li>\n<li>Jueves 29 de junio de 2023 (19.00-20.00): https: <a href=\"https:\/\/events.teams.microsoft.com\/event\/cccb25f5-dcd0-4c35-99f3-c3c5de03b524@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f\">\/\/events.teams.microsoft.com\/event\/cccb25f5-dcd0-4c35-99f3-c3c5de03b524@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f<\/a><\/li>\n<\/ul>\n<p>Esperamos que muchos de ustedes participen en esta investigaci\u00f3n tan prometedora.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>A petici\u00f3n de la Association Fran\u00e7aise des Syndromes de Marfan et Apparent\u00e9s(AssoMarfans), Ludivine ha grabado un v\u00eddeo y estamos organizando &hellip;<\/p>\n","protected":false},"author":2,"featured_media":4033,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[68,186],"tags":[],"class_list":["post-2497","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-gems-es","category-marfan"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - 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