Madame Alisa HERRERO et Monsieur Thomas CARTON DE WIART présentent « Impatients » l’outil qui permettra de rassembler les fonds nécessaires pour la recherche dédiée au syndrome de Marfan et pour soutenir l’action des associations de patients lors du Gala des 20 ans de l’Association Belge du Syndrome de Marfan (ABSM) qui a eu lieu le 5 octobre 2019 au Palais des Académies.
Mme Yvonne JOUSTEN et M. Léon BRANDT "L' ABSM a 20 ans!" Mme le Prof Anne DE PAEPE "L' ABSM, 20 années d"accompagnement de la recherche " Mme le Prof Julie DE BACKER "Le long chemin qui mène à la médecine de précision pour le MFS" Mme…
Chers soutiens, Nous sommes ravis de vous inviter au Gala qui aura lieu le samedi 5 octobre 2019 à partir de 13 heures 30 au Palais des Académies (Rue Ducale 1, 1000 Bruxelles) à l’occasion des 20 ans de l’Association Belge du Syndrome de Marfan (ABSM). L’ABSM a décidé de…
Nous avons le plaisir de partager avec vous le courriel qu’Alisa a envoyé aux « impatients ! » en décembre 2020. Pour rappel, « impatients! » est la plateforme de crowdfunding développée pour supporter les activités de la Fondation 101 Génomes. Dans sa lettre, Alisa fait le point sur les avancées qui ont été réalisées…
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