{"id":4277,"date":"2019-10-13T10:26:20","date_gmt":"2019-10-13T08:26:20","guid":{"rendered":"https:\/\/f101g.org\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/"},"modified":"2019-10-13T10:26:20","modified_gmt":"2019-10-13T08:26:20","slug":"declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome","status":"publish","type":"post","link":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/","title":{"rendered":"Declaration of cooperation in the 101 Genomes project dedicated to Marfan syndrome"},"content":{"rendered":"<p>At the 20-year Gala of the Belgian Marfan Syndrome Association (ABSM) held on October 5, 2019 at the Palais des Acad\u00e9mies, the Presidents of the Belgian, Luxembourg and French patient associations officially signed a declaration of cooperation in the 101 Genomes Project dedicated to Marfan Syndrome.<\/p>\n<p>&nbsp;<\/p>\n<h4><strong>Signed charter version:<\/strong><\/h4>\n<a href=\"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/20191005-F101G-D\u00e9claration-de-cooperation-vSign\u00e9e.pdf\" class=\"pdfemb-viewer\" style=\"\" data-width=\"max\" data-height=\"max\" data-toolbar=\"bottom\" data-toolbar-fixed=\"off\">20191005 F101G Declaration of cooperation vSigned<\/a>\n<p>&nbsp;<\/p>\n<h4><strong>Version A4 FR:<\/strong><\/h4>\n<a href=\"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/20191005-F101G-D\u00e9claration-FR-vA4.pdf\" class=\"pdfemb-viewer\" style=\"\" data-width=\"max\" data-height=\"max\" data-toolbar=\"bottom\" data-toolbar-fixed=\"off\">20191005 F101G Declaration FR vA4<\/a>\n<p>&nbsp;<\/p>\n<h4><strong>A4 EN version:<\/strong><\/h4>\n<a href=\"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/20191005-F101G-Declaration-EN-vA4.pdf\" class=\"pdfemb-viewer\" style=\"\" data-width=\"max\" data-height=\"max\" data-toolbar=\"bottom\" data-toolbar-fixed=\"off\">20191005 F101G Declaration EN vA4<\/a>\n<p>&nbsp;<\/p>\n<p>[ngg src=&#8221;galleries&#8221; ids=&#8221;3&#8243; display=&#8221;basic_thumbnail&#8221;]&nbsp;<\/p>\n<figure style=\"width: 1381px\" class=\"wp-caption alignright\"><img loading=\"lazy\" decoding=\"async\" class=\"ngg-singlepic ngg-right\" src=\"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/CD_2019_10_05_16_03_41.jpg\" alt=\"CD_2019_10_05_16_03_41\" width=\"1381\" height=\"922\"><figcaption class=\"wp-caption-text\">Photo credits: Christophe Danaux | birdy@christophedanaux.be | www.birdy.photo<\/figcaption><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>At the 20-year Gala of the Belgian Marfan Syndrome Association (ABSM) held on October 5, 2019 at the Palais des &hellip;<\/p>\n","protected":false},"author":2,"featured_media":3110,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[87],"tags":[88,89],"class_list":["post-4277","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-absm-20-gala","tag-marfan-en","tag-patient-en"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Declaration of cooperation in the 101 Genomes project dedicated to Marfan syndrome - 101 Genomes Foundation - Genomics for Rare Diseases<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Declaration of cooperation in the 101 Genomes project dedicated to Marfan syndrome - 101 Genomes Foundation - Genomics for Rare Diseases\" \/>\n<meta property=\"og:description\" content=\"At the 20-year Gala of the Belgian Marfan Syndrome Association (ABSM) held on October 5, 2019 at the Palais des &hellip;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/\" \/>\n<meta property=\"og:site_name\" content=\"101 Genomes Foundation - Genomics for Rare Diseases\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/F101Genomes\" \/>\n<meta property=\"article:published_time\" content=\"2019-10-13T08:26:20+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/CD_2019_10_05_16_03_41.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1798\" \/>\n\t<meta property=\"og:image:height\" content=\"1200\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Romain Alderweireldt\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Romain Alderweireldt\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/\"},\"author\":{\"name\":\"Romain Alderweireldt\",\"@id\":\"https:\/\/f101g.org\/en\/#\/schema\/person\/a4e79a5e8f8899d9359fb185cb377fa0\"},\"headline\":\"Declaration of cooperation in the 101 Genomes project dedicated to Marfan syndrome\",\"datePublished\":\"2019-10-13T08:26:20+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/\"},\"wordCount\":147,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\/\/f101g.org\/en\/#organization\"},\"image\":{\"@id\":\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/CD_2019_10_05_16_03_41.jpg\",\"keywords\":[\"Marfan\",\"Patient\"],\"articleSection\":[\"ABSM 20 Gala\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/\",\"url\":\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/\",\"name\":\"Declaration of cooperation in the 101 Genomes project dedicated to Marfan syndrome - 101 Genomes Foundation - Genomics for Rare Diseases\",\"isPartOf\":{\"@id\":\"https:\/\/f101g.org\/en\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/CD_2019_10_05_16_03_41.jpg\",\"datePublished\":\"2019-10-13T08:26:20+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#primaryimage\",\"url\":\"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/CD_2019_10_05_16_03_41.jpg\",\"contentUrl\":\"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/CD_2019_10_05_16_03_41.jpg\",\"width\":1798,\"height\":1200},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/f101g.org\/en\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Declaration of cooperation in the 101 Genomes project dedicated to Marfan syndrome\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/f101g.org\/en\/#website\",\"url\":\"https:\/\/f101g.org\/en\/\",\"name\":\"101 Genomes Foundation - Genomics for Rare Diseases\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/f101g.org\/en\/#organization\"},\"alternateName\":\"Fondation 101 Genomes\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/f101g.org\/en\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/f101g.org\/en\/#organization\",\"name\":\"Fondation 101 Genomes\",\"alternateName\":\"F101G\",\"url\":\"https:\/\/f101g.org\/en\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/f101g.org\/en\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/f101g.org\/wp-content\/uploads\/2024\/06\/101GF_24_003_Logo-square-01.png\",\"contentUrl\":\"https:\/\/f101g.org\/wp-content\/uploads\/2024\/06\/101GF_24_003_Logo-square-01.png\",\"width\":3302,\"height\":3302,\"caption\":\"Fondation 101 Genomes\"},\"image\":{\"@id\":\"https:\/\/f101g.org\/en\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/F101Genomes\",\"https:\/\/www.instagram.com\/f101genomes\/\",\"https:\/\/www.linkedin.com\/company\/fondation-101-gnomes\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/f101g.org\/en\/#\/schema\/person\/a4e79a5e8f8899d9359fb185cb377fa0\",\"name\":\"Romain Alderweireldt\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/f101g.org\/en\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/10f417f5767a9006fc2d86d30c5678e47b29c8e8b2035d47d35525a3d36cf4ea?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/10f417f5767a9006fc2d86d30c5678e47b29c8e8b2035d47d35525a3d36cf4ea?s=96&d=mm&r=g\",\"caption\":\"Romain Alderweireldt\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Declaration of cooperation in the 101 Genomes project dedicated to Marfan syndrome - 101 Genomes Foundation - Genomics for Rare Diseases","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/","og_locale":"en_US","og_type":"article","og_title":"Declaration of cooperation in the 101 Genomes project dedicated to Marfan syndrome - 101 Genomes Foundation - Genomics for Rare Diseases","og_description":"At the 20-year Gala of the Belgian Marfan Syndrome Association (ABSM) held on October 5, 2019 at the Palais des &hellip;","og_url":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/","og_site_name":"101 Genomes Foundation - Genomics for Rare Diseases","article_publisher":"https:\/\/www.facebook.com\/F101Genomes","article_published_time":"2019-10-13T08:26:20+00:00","og_image":[{"width":1798,"height":1200,"url":"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/CD_2019_10_05_16_03_41.jpg","type":"image\/jpeg"}],"author":"Romain Alderweireldt","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Romain Alderweireldt","Est. reading time":"1 minute"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#article","isPartOf":{"@id":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/"},"author":{"name":"Romain Alderweireldt","@id":"https:\/\/f101g.org\/en\/#\/schema\/person\/a4e79a5e8f8899d9359fb185cb377fa0"},"headline":"Declaration of cooperation in the 101 Genomes project dedicated to Marfan syndrome","datePublished":"2019-10-13T08:26:20+00:00","mainEntityOfPage":{"@id":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/"},"wordCount":147,"commentCount":0,"publisher":{"@id":"https:\/\/f101g.org\/en\/#organization"},"image":{"@id":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#primaryimage"},"thumbnailUrl":"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/CD_2019_10_05_16_03_41.jpg","keywords":["Marfan","Patient"],"articleSection":["ABSM 20 Gala"],"inLanguage":"en-US","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/","url":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/","name":"Declaration of cooperation in the 101 Genomes project dedicated to Marfan syndrome - 101 Genomes Foundation - Genomics for Rare Diseases","isPartOf":{"@id":"https:\/\/f101g.org\/en\/#website"},"primaryImageOfPage":{"@id":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#primaryimage"},"image":{"@id":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#primaryimage"},"thumbnailUrl":"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/CD_2019_10_05_16_03_41.jpg","datePublished":"2019-10-13T08:26:20+00:00","breadcrumb":{"@id":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#primaryimage","url":"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/CD_2019_10_05_16_03_41.jpg","contentUrl":"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/CD_2019_10_05_16_03_41.jpg","width":1798,"height":1200},{"@type":"BreadcrumbList","@id":"https:\/\/f101g.org\/en\/declaration-of-cooperation-in-the-101-genomes-project-dedicated-to-marfan-syndrome\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/f101g.org\/en\/"},{"@type":"ListItem","position":2,"name":"Declaration of cooperation in the 101 Genomes project dedicated to Marfan syndrome"}]},{"@type":"WebSite","@id":"https:\/\/f101g.org\/en\/#website","url":"https:\/\/f101g.org\/en\/","name":"101 Genomes Foundation - Genomics for Rare Diseases","description":"","publisher":{"@id":"https:\/\/f101g.org\/en\/#organization"},"alternateName":"Fondation 101 Genomes","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/f101g.org\/en\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/f101g.org\/en\/#organization","name":"Fondation 101 Genomes","alternateName":"F101G","url":"https:\/\/f101g.org\/en\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/f101g.org\/en\/#\/schema\/logo\/image\/","url":"https:\/\/f101g.org\/wp-content\/uploads\/2024\/06\/101GF_24_003_Logo-square-01.png","contentUrl":"https:\/\/f101g.org\/wp-content\/uploads\/2024\/06\/101GF_24_003_Logo-square-01.png","width":3302,"height":3302,"caption":"Fondation 101 Genomes"},"image":{"@id":"https:\/\/f101g.org\/en\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/F101Genomes","https:\/\/www.instagram.com\/f101genomes\/","https:\/\/www.linkedin.com\/company\/fondation-101-gnomes\/"]},{"@type":"Person","@id":"https:\/\/f101g.org\/en\/#\/schema\/person\/a4e79a5e8f8899d9359fb185cb377fa0","name":"Romain Alderweireldt","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/f101g.org\/en\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/10f417f5767a9006fc2d86d30c5678e47b29c8e8b2035d47d35525a3d36cf4ea?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/10f417f5767a9006fc2d86d30c5678e47b29c8e8b2035d47d35525a3d36cf4ea?s=96&d=mm&r=g","caption":"Romain Alderweireldt"}}]}},"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/f101g.org\/wp-content\/uploads\/2019\/10\/CD_2019_10_05_16_03_41.jpg","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/f101g.org\/en\/wp-json\/wp\/v2\/posts\/4277","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/f101g.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/f101g.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/f101g.org\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/f101g.org\/en\/wp-json\/wp\/v2\/comments?post=4277"}],"version-history":[{"count":0,"href":"https:\/\/f101g.org\/en\/wp-json\/wp\/v2\/posts\/4277\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/f101g.org\/en\/wp-json\/wp\/v2\/media\/3110"}],"wp:attachment":[{"href":"https:\/\/f101g.org\/en\/wp-json\/wp\/v2\/media?parent=4277"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/f101g.org\/en\/wp-json\/wp\/v2\/categories?post=4277"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/f101g.org\/en\/wp-json\/wp\/v2\/tags?post=4277"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}