{"id":4155,"date":"2019-09-19T22:37:15","date_gmt":"2019-09-19T20:37:15","guid":{"rendered":"https:\/\/f101g.org\/invitation-to-the-absm-20th-anniversary-gala-at-the-palais-des-academies-on-october-5-2019\/"},"modified":"2019-09-19T22:37:15","modified_gmt":"2019-09-19T20:37:15","slug":"invitation-to-the-absm-20th-anniversary-gala-at-the-palais-des-academies-on-october-5-2019","status":"publish","type":"post","link":"https:\/\/f101g.org\/en\/invitation-to-the-absm-20th-anniversary-gala-at-the-palais-des-academies-on-october-5-2019\/","title":{"rendered":"Invitation to the ABSM 20th Anniversary Gala at the Palais des Acad\u00e9mies on October 5, 2019"},"content":{"rendered":"<p>Dear supporters,<\/p>\n<p>We are delighted to invite you to the Gala to be held on Saturday, October 5, 2019 from 1:30 pm at the Palais des Acad\u00e9mies (Rue Ducale 1, 1000 Brussels) to celebrate the 20th anniversary of the Belgian Marfan Syndrome Association (ABSM).<\/p>\n<p>ABSM has decided to be closely associated with this celebration, as we will have the opportunity to present the Foundation we have created to advance understanding of the genome in order to provide better care for rare diseases.<\/p>\n<p><!--more-->Eminent members of our scientific committee will also be speaking, such as&nbsp;: Professor Anne DE PAEPE, Rector of Ghent University&nbsp;; Professor Julie DE BACKER, Ghent University&nbsp;; Professor Bart LOEYS, University of Antwerp and Professor Guillaume SMITS, Universit\u00e9 Libre de Bruxelles.<\/p>\n<p>On this occasion, Professors Loeys and Smits will report on the initial results of the GEMS and GEMVAP projects, which have been carried out thanks to our action and your support&nbsp;! We look forward to hearing them.<\/p>\n<p>Following the presentations, several patient associations will sign a declaration of cooperation with the 101 Genomes Project, while singer Olga Dubois will perform a piece by Rachmaninov in the marble gallery of the Palais des Acad\u00e9mies, where a cocktail reception will be served.<\/p>\n<p>You&#8217;ll find all the details about this event in the attached invitation.<\/p>\n<p>We hope you&#8217;ll have the opportunity to join us on October 5, and if you do, we invite you to confirm your attendance via <a href=\"https:\/\/absm20ans.eventbrite.be\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/absm20ans.eventbrite.be<\/a>.<\/p>\n<p>Kind regards,<\/p>\n<p>Ludivine Verboogen and Romain Alderweireldt<\/p>\n<hr>\n<h4 style=\"text-align: center;\">The 101 Genomes Foundation is pleased to invite you to the conference to be held on Saturday, October 5, 2019 at the Palais des Acad\u00e9mies on the occasion of the 20th anniversary of the Belgian Marfan Syndrome Association (ABSM).<\/h4>\n<p style=\"text-align: center;\"><u>Program<\/u><\/p>\n<p style=\"text-align: center;\">1:30 pm welcome &#8211; 2:00 pm presentations &#8211; 4:30 pm cocktail reception and musical entertainment<\/p>\n<p style=\"text-align: center;\"><u>Speakers<\/u><\/p>\n<p style=\"text-align: center;\">Yvonne JOUSTEN and L\u00e9on BRANDT&nbsp;will look back on 20 years of ABSM.<\/p>\n<p style=\"text-align: center;\">Professor Anne DE PAEPE, Rector of the University of Ghent &amp;.<br \/>\nPresident of the 101 Genomes Fund at the King Baudouin Foundation,<br \/>\nemphasize the essential role of patient associations in supporting research<\/p>\n<p style=\"text-align: center;\">Professor Julie DE BACKER, University of Ghent &amp; Co-President<br \/>\nof the Scientific Committee of the 101 Marfan Genomes Project, will trace the<br \/>\n&#8221;&nbsp;<em>long road to precision medicine for Marfan syndrome&nbsp;<\/em>&#8220;<\/p>\n<p style=\"text-align: center;\">Mrs Ludivine VERBOOGEN and Mr Romain ALDERWEIRELDT,<br \/>\nfounders of the F101G, will explain the common goal of ABSM and the F101G<br \/>\nsave 10 years in Marfan syndrome research<\/p>\n<p style=\"text-align: center;\">Professor Bart LOEYS, University of Antwerp &amp; Co-Chairman<br \/>\nof the Scientific Committee of the 101 Marfan Genomes Project, will present the state of research initiated<br \/>\nthrough the action of F101G&nbsp;: <em>Genome-wide Epistasis for cardiovascular severity in Marfan Study<\/em> (GEMS)<\/p>\n<p style=\"text-align: center;\">Professor Guillaume SMITS, ULB, member<br \/>\nfrom the Scientific Committee of the 101 Marfan Genomes Project, will explain the &#8221;&nbsp;GEMVAP&nbsp;&#8221; tool developed thanks to the F101G and the role of artificial intelligence in the diagnosis of Marfan syndrome.<\/p>\n<p style=\"text-align: center;\">Ms Alisa HERRERO and Mr Thomas CARTON DE WIART will present &#8221;&nbsp;BEAT-IT&nbsp;!&nbsp;&#8220;, the tool that will help raise the funds needed for research and associations.<\/p>\n<p style=\"text-align: center;\"><u>Signatures<\/u><\/p>\n<p style=\"text-align: center;\">The presentations will be followed by the official signing of the declaration of cooperation for the 101 Genomes Project dedicated to Marfan syndrome by the presidents of the associations present.<\/p>\n<p style=\"text-align: center;\"><u>Address of the day<\/u><\/p>\n<p style=\"text-align: center;\">Rue Ducale 1, 1000 Brussels<\/p>\n<p style=\"text-align: center;\">Please confirm your attendance at <a href=\"https:\/\/absm20ans.eventbrite.be\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/absm20ans.eventbrite.be<\/a><br \/>\nInformation&nbsp;: <a href=\"mailto:20ans@marfan.be\" target=\"_blank\" rel=\"noopener noreferrer\">20ans@marfan.be<\/a> or +32 (0)470\/42 91 39<\/p>\n<p style=\"text-align: center;\"><em>King Baudouin Foundation &#8211; 101 Genomes Fund<\/em><em> | BE10 0000 0000 0404 BIC : BPOTBEB1<br \/>\nStructured communication : ***017\/1730\/00036***<\/em><\/p>\n<hr>\n<p>&nbsp;<\/p>\n<table style=\"height: 334px;\" width=\"814\">\n<tbody>\n<tr>\n<td width=\"614\">\n<p style=\"text-align: center;\">The 101 Genomes Foundation aims to advance understanding of the genome in order to provide better care for the rare diseases that affect children.<\/p>\n<p style=\"text-align: center;\">The Foundation&#8217;s pilot project is the 101 Genomes Project dedicated to Marfan syndrome. Subsequently, other projects dedicated to other rare diseases may be set up.<\/p>\n<p style=\"text-align: center;\">The King Baudouin Foundation collects tax-deductible donations for the benefit of the 101 Genomes Fund via account BE10-0000-0000-0404(BIC: BPOTBEB1) accompanied by the structured message: ***017\/1730\/00036***.<\/p>\n<p style=\"text-align: center;\">For more information, visit: <a href=\"https:\/\/f101g.org\">f101g.org<\/a><\/p>\n<p style=\"text-align: center;\">Or contact us at <a href=\"mailto:info@f101g.org\">info@f101g.org<\/a> or by telephone on +32(0)476.87.18.63<\/p>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Dear supporters, We are delighted to invite you to the Gala to be held on Saturday, October 5, 2019 from &hellip;<\/p>\n","protected":false},"author":2,"featured_media":3000,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[87],"tags":[90,88,89,91],"class_list":["post-4155","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-absm-20-gala","tag-activity","tag-marfan-en","tag-patient-en","tag-scientist"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.9 - 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