{"id":4085,"date":"2021-02-28T19:38:10","date_gmt":"2021-02-28T18:38:10","guid":{"rendered":"https:\/\/f101g.org\/radiorgs-im-not-a-unicorn-campaign\/"},"modified":"2021-02-28T19:38:10","modified_gmt":"2021-02-28T18:38:10","slug":"radiorgs-im-not-a-unicorn-campaign","status":"publish","type":"post","link":"https:\/\/f101g.org\/en\/radiorgs-im-not-a-unicorn-campaign\/","title":{"rendered":"RaDiOrg\u2019s \u201cI\u2019m not a unicorn\u201d campaign"},"content":{"rendered":"

With the ‘I’m not a unicorn’ campaign, RaDiOrg reminds us that, although they are often invisible, people with rare diseases really do exist…unlike unicorns. For the first time, this national campaign will benefit the 8 Belgian rare disease hospitals. Find out more about its challenges, objectives and how the F101G is playing its part.<\/strong>.<\/p>\n

Since 2019, Ludivine has represented the Belgian Marfan Syndrome Association(ABSM<\/a>) and the 101 Genomes Foundation at RaDiOrg. RaDiOrg is the umbrella association for rare disease patient organizations in Belgium. Ludivine has been invited to join the RaDiOrg Board of Directors, where she holds the position of Vice-President(Team RaDiOrg<\/a>).<\/p>\n

Under the impetus of its director, Eva Schoeters, RaDiOrg launched the ‘I’m not a unicorn<\/em>‘ campaign this year to raise public awareness of the cause of rare diseases(#notaunicorn<\/a>).<\/p>\n

For the first time, the CHU de Li\u00e8ge, the UZ Gent, the H\u00f4pital Erasme, the UZ Brussel, the Cliniques Universitaires Saint Luc, the UZ Leuven, the Grand H\u00f4pital de Charleroi and the UZA – i.e. the 8 Belgian “rare disease function” hospitals – have rallied around the campaign initiated and the message carried by RaDiOrg (8 Centers<\/a>).<\/p>\n

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Fourteen pharmaceutical companies (Boehringer Ingelheim, Chiesi, Gilead, Janssen, Novartis, Pfizer, Roche, Sanofi, Sobi, Takeda, UCB, Ultragenyx, Biogen, Bristol Myers Squibb), pharma.be (the general association of the pharmaceutical industry) and the National Lottery are supporting the #notaunicorn campaign(Sponsors<\/a>).<\/p>\n

The aim of the campaign is to raise public awareness :<\/p>\n